30269934, 64-9.001 - Florida Administrative Rules, Law, Code, Register

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Florida Department of State and Division of Library and Information Services

Notice: 30269934

Notice of Proposed Rule

Department:

DEPARTMENT OF HEALTH

Chapter:

SICKLE CELL REGISTRY

Overview

RULE:

64-9.001

Procedures for Opting Out of and Opting Into the Sickle Cell Registry

PURPOSE:

To implement a sickle cell registry for individuals that carry the sickle cell disease or trait by providing a process and forms for individuals and for parents or guardians of newborns and infants to opt out of the registry and for individuals and parents or guardians of newborns and infants to opt into the registry.

SUMMARY:

This rulemaking adds a process and forms to implement the sickle cell registry created by section 383.147, Florida Statutes.

RULEMAKING AUTHORITY:

383.147, F.S.

LAW:

383.147, F.S.

PRINT PUBLISH DATE:

12/2/2025 Vol. 51/232

COMMENTS:

From 12/2/2025 To 12/23/2025 (21 Days)

REFERENCE MATERIALS:

Ref-18994 DH8006-CMS-07/2024, Florida Sickle Cell Registry Infant Opt-Out Form
Ref-18995 DH8001-OMH-11/2025, Florida Sickle Cell Registry Opt-In Form
Ref-18996 DH8000-OMH-11/2025, Florida Sickle Cell Registry Opt-Out Form

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