Rule: 64-9.001 Prev   Up   Next

Rule Title: Procedures for Opting Out of and Opting Into the Sickle Cell Registry
Department: DEPARTMENT OF HEALTH    Add to MyFLRules Favorites
Add to MyFLRules Favorites
Division: Departmental
Chapter: SICKLE CELL REGISTRY

Latest version of the final adopted rule presented in Florida Administrative Code (FAC):

VIEW_RULE Effective Date: 5/6/2026
History Notes: Rulemaking Authority 383.147 FS. Law Implemented 383.147 FS. History–New 5-6-26.
References in this version: Ref-18994 DH8006-CMS-02-2026 Florida Sickle Cell Registry Infant Opt-Out Form
Ref-18995 DH8001-OMH-11/2025, Florida Sickle Cell Registry Opt-In Form
Ref-18996 DH8000-OMH-11/2025, Florida Sickle Cell Registry Opt-Out Form
History of this Rule since Jan. 6, 2006
Notice /
Adopted
Section Description ID Publish
Date
View Text Final
64-9.001
Procedures for Opting Out of and Opting Into the Sickle Cell Registry 30800524 Effective:
05/06/2026
View Text Change
64-9.001
Procedures for Opting Out of and Opting Into the Sickle Cell Registry 30585475 3/2/2026
Vol. 52/41
View Text Proposed
64-9.001
To implement a sickle cell registry for individuals that carry the sickle cell disease or trait by providing a process and forms for individuals and for parents or guardians of newborns and infants to opt out of the registry .... 30269934 12/2/2025
Vol. 51/232
View Text Development
64-9.001
......
The purpose of this rulemaking is to establish a sickle cell registry for individuals that carry the sickle cell disease or trait, to provide reporting requirements, and to provide forms for individuals and parents or guardians .... 29263462 2/13/2025
Vol. 51/30